F.I.R.S.T. The Foundation for Ichthyosis and Related Skin Types, F.I.R.S.T.
Project SOS
The Ichthyosis Support Group
London-based support group
Pachyonychia Congenita Project
Ethan's Site
The AAD
American Academy of Dermatology
The Alliance of Genetic Support Groups
Alliance of Genetic Support Groups, Inc